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Family Resources


Family Caregiver Alliance: https://www.caregiver.org

For 40 years Family Caregiver Alliance (FCA) has supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions.

National MS Society: https://www.nationalmssociety.org

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS. Everything we do is focused so that people affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever.

National Organization on Disability: https://www.nod.org

The National Organization on Disability (NOD) is a private, non-profit organization that promotes the full participation and contributions of America’s 57 million people with disabilities in all aspects of life. NOD focuses on increasing employment opportunities for the 80-percent of working-age Americans with disabilities who are not employed.

The Coordinating Center Program: http://www.coordinatingcenter.org

The Coordinating Center has 35 years of experience supporting children, youth, adults and seniors with complex medical needs and disabilities statewide. Deeply committed to a person-centered approach and philosophy, The Coordinating Center helps individuals of all ages and abilities achieve optimal quality health, affordable healthcare and meaningful community life.

Feeding Tube Awareness Foundation: http://www.feedingtubeawareness.org

This website is dedicated to providing pragmatic information for parents and caregivers on handling every aspect of tube feeding and navigating day-to-day life with a child who is tube-fed. Our education materials are written in lay terms by those with personal experience. They are reviewed by medical professionals, and have been distributed by hundreds of children’s hospitals, medical practices, and medical supply companies.

The Global Tracheostomy Collaborative: http://www.globaltrach.org

Our mission is to partner with hospitals and providers around the world, and to work together to improve the care, safety and quality of life of every individual with a tracheostomy.

The Arc of Montgomery County: http://www.thearcmontgomerycounty.org

Each day, The Arc Montgomery County directly supports over 500 children, youth, adults and families by providing child care, work skills training, employment opportunities, community living services, resources, advocacy and respite care.

The Arc of Southern Maryland: https://www.arcsomd.org

The Arc Southern Maryland is the leading advocate for children and adults with I/DD living and working in Southern Maryland. The Arc provides an array of services including housing, job placement, and behavioral support services. Our mission is to create opportunities for independence and personal success for people with different abilities in inclusive communities.

The Arc of Prince George’s County: http://www.thearcofpgc.org

From its humble beginnings to the present day, The Arc has been on the front lines of public policy - influencing schools, businesses, government leaders, and neighborhoods to make Prince George's County a livable community for everyone.

International Rett Syndrome Foundation: https://www.rettsyndrome.org

Our Mission: To accelerate full spectrum research to cure Rett syndrome and empower families with information, knowledge and connectivity.